Anbefalt litteratur
Sykdomserfaringer
Lawton J. Lay experiences of health and illness: past research and future agendas. Sociol Health Illness 2003; 23-40. http://www.ncbi.nlm.nih.gov/pubmed/14498928
Lawton J, Rankin D, Peel E, Douglas M. Patient perception and experiences of transition in diabetes care: a longitudinal qualitative study. Health Expect 2009; 12: 138-148.http://www.ncbi.nlm.nih.gov/pubmed/19309488
Mengshoel AM. Living with a fluctuating illness of ankylosing spondylitis – a qualitative study. Arthritis & Rheumatism (Arthritis Care & Research ), 2008; 59 (10):143944. http://onlinelibrary.wiley.com/doi/10.1002/art.24103/pdf
Mengshoel AM, Norheim KB, Omdal R. Primary Sj?gren’s syndrome –fatigue is an ever –present, fluctuating and uncontrollable lack of energy. Arthr Care and Research. 2014 Aug; 66 (8): 1227-32. http://onlinelibrary.wiley.com/doi/10.1002/acr.22263/pdf
Nettleton S. "I just want permission to be ill": Towards a sociology of medically unexplained symptoms. Social Science Medicine 2006; 62: 1167-78. http://ac.els-cdn.com/S027795360500403X/1-s2.0-S027795360500403X-main.pdf?_tid=2fcb1b74-527a-11e3-b63f-00000aacb35f&acdnat=1385017229_ad6b7eed37d766a76d4c3c20202fb319
Paterson B.L. The shifting perspectives model of chronic illness. J Nursing Scholarship 2001; 33:21-26. http://www.ncbi.nlm.nih.gov/pubmed/11253576
Sallinen, M., Kukkurainen, M. L., Peltokallio, L., Mikkelsson, M., & Anderberg, U. M. Fatigue, worry, and fear--life events in the narratives of women with fibromyalgia. Health Care for Women International, 2011; 33(5), 473-494. http://www.tandfonline.com/doi/pdf/10.1080/07399332.2011.645967
Recoveryprosesser
Ahlsen B, Mengshoel AM, Solbr?kke KN. Shelter from the storm; men with chronic pain and narratives from the rehabilitation clinic. Patient Educ Couns. 2012 Aug 1. [Epub ahead of print]. http://www.ncbi.nlm.nih.gov/pubmed/22858416
Grape HE, Solbr?kke KN, Kirkevold M, Mengshoel AM. Staying healthy from Fibromyalgia is ongoin hard work. Qualitative Health Research. 2014 Nov.11. http://qhr.sagepub.com/content/early/2014/11/07/1049732314557333.full.pdf+html
Grape HE, Solbr?kke KN, Kirkevold M, Mengshoel AM. Tiredness and fatigue during processes of illness and recovery: A qualitative study of women recovered from fibromyalgia syndrome. Physiother Theor Pract (in press, deles ut p? kurset)
Kralik D, Koch T, Price K, Howard N. Chronic illness self-management: taking action to create order. J Clin Nursing 2004; 13: 259-267. http://www.ncbi.nlm.nih.gov/pubmed/14723679
Mengshoel AM, Heggen K. Recovery from fibromyalgia - previous patients' own experiences. Disabil Rehabil. 2004 ; 26:46-53. http://www.ncbi.nlm.nih.gov/pubmed/14660198
Ohlsson-Nevo E, Andershed B, Nilsson U, Anderzén-Carlsson A. Life is back to normal and yet not - partners' and patient's experiences of life of the first year after colorectal cancer surgery. J Clin Nursing 2011 (E-pub ahead of print). http://www.ncbi.nlm.nih.gov/pubmed/21883573
Richardson JC, Ong BN, Sim J. Remaking the future: contemplating a life with chronic widespread pain. Chron Illness 2006; 2: 209-218. http://www.ncbi.nlm.nih.gov/pubmed/17007697
Roberts g, Boardman J. Becoming a recovery-oriented practitioner. Adv Psychiatric Treatment 2014; 37-47. http://apt.rcpsych.org/content/20/1/37
Sanderson T, Calnan M, Richards P, Hewlett S. Shifting normalities: interactions of changing conceptions of a normal life and the normalisation of symptoms in rheumatoid arthritis. Sociol Health Illness 2011; 33: 618-33. http://www.ncbi.nlm.nih.gov/pubmed/21281314
Symptomer og livskvalitet
Borge CR, Wahl AK & Moum T (2010) Association of breathlessness with multiple symptoms in chronic obstructive pulmonary disease. Journal of Advanced Nursing. http://www.ncbi.nlm.nih.gov/pubmed/20825511
Borge CR, Wahl AK & Moum T. Pain and quality of life with chronic obstructive pulmonary disease. Heart and Lung 2011. 40, e90-101. http://www.ncbi.nlm.nih.gov/pubmed/21444112
Borge CR, Mengshoel AM, Omenaas E, Moum T, Ekman I, Lein MP, Mack U, Wahl AK. Effects of guided deep breathing on breathlessness and breathing pattern in chronic obstructive pumonary disease: A double-blind randomized control study. Patient Education and Counseling. 2014. I trykk
Ljosaa TM, Mork C, Stubhaug A, Moum T, Wahl AK. Skin pain and skin discomfort is associated with quality of life in patients with psoriasis. J Eur Acad Dermatol Venereol. 2012 Jan;26(1):29-35. doi: 10.1111/j.1468-3083.2011.04000.x.
Epub 2011; Mar 8. http://www.ncbi.nlm.nih.gov/pubmed?term=PMID%3A%2021385220
Ljosaa TM, Rustoen T, M?rk C, Stubhaug A, Miaskowski C, Paul SM, Wahl AK. Skin pain and discomfort in psoriasis: an exploratory study of symptom prevalence and characteristics. Acta Derm Venereol. 2010;90(1):39-45.. http://www.ncbi.nlm.nih.gov/pubmed?term=PMID%3A%2020107724
Wahl AK & Hanestad BR (2004) M?ling av livskvalitet i klinisk praksis en innf?ring. Fagbokforl, Bergen.
Mestring
Bonsaksen T, Lerdal A, Fagermoen S. Trajectories of illness percpetions in persons with chronic illness: An explorative longitudinal study. Journal of Health Psychology. 2013; Oct (E pub ahead of print). http://hpq.sagepub.com/content/early/2013/10/16/1359105313504235.long
Larsen M, Hagen KB, Krogstad AL, Aas E., Wahl AK .Limited evidence of the effects of patient education and self-management interventions in psoriasis patients: A systematic review. 2013 (Epub ahead of print). http://www.ncbi.nlm.nih.gov/pubmed/24184041
Larsen MH, Krogstad AL, Aas E, Moum T, Wahl AK. (2014). A telephone based motivational interviewing intervention has positive effects on psoriasis severity and self-management. A randomized controlled trial. Br J Dermatol Aug 21. E-pub ahead print. http://onlinelibrary.wiley.com/doi/10.1111/bjd.13363/pdf
Nolte S, Osborne RH. A systematic review of outcomes of chronic disease self-management interventions. Quality Life Research. 2013 Sept 22 (7):1805-1816. http://download.springer.com/static/pdf/44/art%253A10.1007%252Fs11136-012-0302-8.pdf?auth66=1385197117_f7dbfe49bc36440b086d02dfb451271c&ext=.pdf
Urstad KH, ?yen O, Andersen MH, Moum T, Wahl AK. The effect of an educational intervention for renal recipients: a randomized controlled trial. Clin Transplant. 2012 May-Jun;26(3):E246-53. doi: 10.1111/j.1399-0012.2012.01666.x.
http://www.ncbi.nlm.nih.gov/pubmed?term=PMID%3A%2022686948
Wahl AK, Rustoen T, Hanestad BR, Gjengedal E & Moum T. Self-efficacy, pulmonary function, perceived health and global quality of life of cystic fibrosis patients. Social indicators Research. 2005; 239-261. http://www.jstor.org/stable/27522201
Osborne RH, Batterham R, Livingston J. The evaluation of chronic disease self-management support across settings: the international experience of the health education impact questionnaire quality monitoring system. Nurs Clin North Am. 2011 Sep;46(3):255-70, v. doi: 10.1016/j.cnur.2011.05.010. PubMed PMID: 21791261. http://www.sciencedirect.com/science/article/pii/S0029646511000351
Osborne RH, Batterham RW, Elsworth GR, Hawkins M, Buchbinder R. The grounded psychometric development and initial validation of the Health Literacy Questionnaire (HLQ). BMC Public Health. 2013 Jul 16;13:658. doi: 10.1186/1471-2458-13-658. PubMed PMID: 23855504; PubMed Central PMCID: PMC371865 http://www.biomedcentral.com/1471-2458/13/658
Bedring – prosess og resultatm?l
Maler et al 2016. Responsiveness of four patient-reported outcome measures to assess physical function in patients with knee osteoarthritis http://www.tandfonline.com/doi/full/10.3109/03009742.2016.1140226
Rolfson et al 2016. Patient-reported outcome measures in arthroplasty registries. Part I. Overview and rationale for patient-reported outcome measures https://www.ncbi.nlm.nih.gov/pubmed/27168175
Moseng et al 2013. Pasient-Spesifikk Funksjons Skala: Et nyttig verkt?y for fysioterapeuter i prim?rhelsetjenesten. http://fysioterapeuten.no/Fag-og-vitenskap/Fagartikler/Pasient-Spesifikk-Funksjons-Skala-Et-nyttig-verktoey-for-fysioterapeuter-i-primaerhelsetjenesten